The Case
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The Case
Martin Beard was six months old when he was diagnosed with haemophilia, a rare blood disorder that stops the blood from clotting. When Martin was growing up in the 1970s, the condition meant prolonged bleeding, even after the slightest cut, easy bruising and problems with joints. A new wonder drug called Factor 8 became available from the NHS (National Health Service), which was imported from the US. The treatment made life easier for haemophiliacs; they no longer needed repeated hospital treatment; they could simply injection themselves at home. Aged 17, Martin heard out of the blue that was HIV positive and had only two years to live. That bombshell came as the international AIDS epidemic was at its height and meant extreme social stigma for anyone who was infected. A pub where Martin used to play pool even banned him because of what he calls was ill-informed ignorance. Meanwhile, media reports began to emerge, questioning the imported drug's safety. It was now known to have been made using blood from thousands of paid donors, including prisoners and drug users. Thankfully Martin outlived his grim prognosis. Decades later, he discovered that his doctors had kept him in the dark about his HIV for several years. He now knew that he was just one of thousands of haemophiliacs and other patients infected with the deadly virus in the 1970s or 1980s. A letter to the UK's haemophilia centres later revealed the patients were unaware they were used as guinea pigs in initial trials of Factor VIII products. Since
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Martin Beard was six months old when he was diagnosed with haemophilia, a rare blood disorder that stops the blood from clotting. When Martin was growing up in the 1970s, the condition meant prolonged bleeding, even after the slightest cut, easy bruising and problems with joints. A new wonder drug called Factor 8 became available from the NHS (National Health Service), which was imported from the US. The treatment made life easier for haemophiliacs; they no longer needed repeated hospital treatment; they could simply injection themselves at home. Aged 17, Martin heard out of the blue that was HIV positive and had only two years to live. That bombshell came as the international AIDS epidemic was at its height and meant extreme social stigma for anyone who was infected. A pub where Martin used to play pool even banned him because of what he calls was ill-informed ignorance. Meanwhile, media reports began to emerge, questioning the imported drug's safety. It was now known to have been made using blood from thousands of paid donors, including prisoners and drug users. Thankfully Martin outlived his grim prognosis. Decades later, he discovered that his doctors had kept him in the dark about his HIV for several years. He now knew that he was just one of thousands of haemophiliacs and other patients infected with the deadly virus in the 1970s or 1980s. A letter to the UK's haemophilia centres later revealed the patients were unaware they were used as guinea pigs in initial trials of Factor VIII products. Since
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sobota, 12:00 | The Case |
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